All whitepapers of the European RWD Summit

On April 7th 2025, 200 experts of the health data ecosystem came to Berlin to discuss key elements of health data usage in various interactive formats at Honic's 'European RWD Summit'.

Here are the three whitepaper summarizing the workshops' findings: 

1. Data Quality (Download)

   3 Key Insights
   1. High quality RWD and being able to assess the quality of a RWD source are crucial for the secondary usage thereof. 
   2. Data quality is commonly assessed on four dimensions: extensiveness, coherence, reliability, and timeliness.
   3. Measures enhancing RWD quality include: strict adherence to structural and semantic standards, standardization of data entry at the at the point of care, and a uniform framework to assess data quality.

2.  Compliance (Download)

   3 Key Insights
   1.  A robust privacy strategy considers the context in which the data is used
   2. Implementing privacy-enhancing technologies requires expertise in different disciplines
   3. Legal uncertainty can be managed by involving relevant stakeholders and domain experts

3. Patient Involvement (Download)

   3 Key Insights
   1. 𝗦𝗶𝗺𝗽𝗹𝗶𝗳𝘆 𝘀𝘁𝗮𝗸𝗲𝗵𝗼𝗹𝗱𝗲𝗿 𝗹𝗮𝗻𝗱𝘀𝗰𝗮𝗽𝗲𝘀 to create a clearer, more navigable system for data sharing and governance.
   2. 𝗘𝗺𝗯𝗲𝗱 𝘁𝗿𝗮𝗻𝘀𝗽𝗮𝗿𝗲𝗻𝗰𝘆 𝗮𝗻𝗱 𝗳𝗲𝗲𝗱𝗯𝗮𝗰𝗸 𝗹𝗼𝗼𝗽𝘀 to strengthen trust and encourage active engagement.
   3. 𝗥𝗲𝗱𝗲𝘀𝗶𝗴𝗻 𝗼𝗽𝘁-𝗼𝘂𝘁 𝘀𝘁𝗿𝘂𝗰𝘁𝘂𝗿𝗲𝘀 with a focus on user experience and meaningful control.